Imani’s Erb’s Palsy Fight

Imani's New Cast

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UPDATE 02-27-2013 I spoke to our cousin last night and he is still looking for donations for Imani’s surgery. The insurance company confirmed that $1500.00 or possibly more, will be their out-of-pocket expense. The money already donated will go to that but they still need money for co-pays, travel, hotel, and food expenses. Any donations are still welcome as they try to raise enough funds to cover the cost of the trip or any unforeseeable circumstances. Please consider donating at least $5.00 to Imani’s donation fund on @You_Caring. We thank all of those who have already donated and shared this information with their communities. 

UPDATE 02-09-2013 : We have great news! We just checked the donations page and saw that the goal was met and even surpassed! People are still donating to Imani and her family! Please continue to share this news.

As I said in one comment from another family going through the same Erb’s Palsy Fight, “It takes a community to help. I am just doing a small part.” But we can continue to bring awareness because there are other families going through the same thing with their children and it also happens to adults. 

Thanks to @You_Caring for tracking our progress and communicating with us via Twitter and Facebook. 

 

We usually write about our own children at Papaheroes and the things we learn from them during our parenthood journey. From time to time other people’s children have taught us lessons in life and we have shared their stories on the blog. Children like Caine Monroy who built an arcade out of cardboard amazed us because of his talent and drive to create something fun out of scraps.  Jaden’s Mini-Orbiter search during Christmas had us elated when @BabyEinstein pulled through to deliver this discontinued toy for Christmas.

The Corbin Family

Imani Corbin holds a special place in my heart because she is family. My cousin Sebastian and his wife Maritza brought little Imani into this world in June of 2012. I had been in communication with my cousin via Facebook since 2010 and unfortunately one of the last times I saw my cousin was for his dad’s funeral.

Sebastian and Maritza were going to bless the family with another  little girl. Their lives were changed when Imani was diagnosed with Erb’s Palsy . Since her diagnosis, she has gone to therapy with her mom and dad and visited several doctor’s specializing in this field.

Boston Bound to Children’s Hospital

This past  Sunday while millions of families were glued to the Superbowl game, my cousins were driving from Connecticut to Boston, Massachusetts to see Peter M. Waters, MD, Chief of Clinical Orthopedics at Children’s Hospital Boston.

Imani after her long road trip from Connecticut to Boston

Imani after her long road trip from Connecticut to Boston

 

At the appointment, they were told that Imani would have to undergo surgery to help repair/replace her C5, C6 and some C7 nerves on March 29th. Here is a video to help you understand what Erb’s Palsy is from Dr. Waters. You can continue viewing more videos on the same channel on YouTube regarding Erb’s Palsy.

 

A little help goes a long way

Being told that your young baby has to have surgery can become stressful and emotional for a family. Sebastian, Maritza, and Imani have chosen to fight! I know that parents find strength from deep within their souls when the average person buckles under the slightest pressures of life. The drive my cousin and his wife have to make sure Imani is given the best care is something I admire. When I read about how they would have to go to Boston for the surgery, I thought that maybe as a community of friends and family, we could help them out.

Erb's Palsy Awareness

Imani’s Erb’s Palsy Bracelet. See post for details on purchasing.

 

My cousin has set up a donations page for travel, lodging, food, tolls, co-pays, and other expenses for this trip from Connecticut to Massachusetts. A little help goes a long way and if you would like to help them out, just go to this link  and donate the amount you can. Even if you can’t donate, join Imani’s Facebook page and follow her progress and journey. The family is also selling Erb’s Palsy Awareness bracelets for $20.00. Five of those dollars will go to Imani’s fund. Inquire about the bracelets with my cousins via Facebook.

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I will definitely be updating you with Imani’s progress and hope that this surgery in March is successful. We know that the road to recovery is going to be long, but I know many friends and family members will be there for Imani and her parents.

If you know of successful surgeries and recoveries, please share them with us in the comments below or share them with Imani on her Facebook page.

Photo credit to My cousin Sebastian and wife Maritza.

Help Imani and her Parents

with the fight against Erb’s Palsy.

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Creating the Right Environment

As humans we get into a mode of procrastination and not getting things done. On occasions we are not in the right state of mind, in the right place, or the environment is setup in a way where obstacles arise everywhere.

One of my biggest distractions is the clutter that seems to get into my workspace and all around the house. Lately I have been doing a better job at just attacking clutter from the first item that gets misplaced by storing it immediately. I have also been reading up on Feng Shui to help me organize my home in a way that it increases peace and harmony.

With a 20-month old it can be difficult sometimes having everything organized. We are teaching her how to clean up after herself. We make it fun for her by using a song many of you might have heard (the clean up song).

Organizing clutter is not the only thing I do. I also make sure the temperature indoors is comfortable by using a fan or a/c, the sounds (preferably music) are calming and fun, and choosing aromas that can wake up the mind and calm the spirit.

Not only do I use these methods for getting myself in the right state of mind, I also use them with my daughter when I see something is out of balance.

When she gets cranky and shifting into tantrum mode, I have a small checklist in my head analyzing what is going on with her so I can balance out the situation.

My daughter is like me and she is not a fan of sleeping. Lucy says she is like her dad that when it is time to go to rest she still wants to keep on going. On occasions that desire to continue awake, battles with her body telling her to shut down for a little while or for the day.

When I see this type of behavior, we look for her favorite blanket, change her diaper (especially if it is at the end of the day), set a temperature where she is comfortable (usually colder since we live in the tropics and her active little lifestyle keeps her always sweating), and I might even use aroma therapy with essential oils to calm her down.

Last year I learned from Candance Vorhaus via her blog on the benefits Frankincense in creating a calm environment and calming the body. I have been using Frankincense since to help my daughter calm down.

Setting the environment for our kids is as important as setting the environment for us. When there is an imbalance in our environment, we need to search for that balance because it benefits your child and the rest of the family.

How do you set the tone in your home to have a healthy and balanced family environment?

 

Being Elmo

Kevin at Sundance with his young protégé Tau. (photo from beingelmo.com)

Weeks ago I made the decision to download Elmo Loves ABCs for iPad so my daughter could learn while playing. I could not imagine that I would find interesting facts about the puppet called Elmo.

Does Everyone Really Know Elmo?

For years Elmo has earned the most popular Sesame Street character title. In 1996 when the Tickle Me Elmo Doll was released some people went wild just to get their hands on a cute representation of Elmo.

My daughter was first attracted to the the puppet in the Elmo ABC’s app. I started switching our daily routine of watching Payasa Agapita videos and went searching for Elmo videos.

While searching I found this interview of Kevin Clash. He popped up on my Elmo search because he happens to be the person who brings Elmo to life.

After watching the interview I was intrigued to know a bit more about Kevin’s life but when my daughter kept on requesting more fun videos I left it as a task to do later.

Being Elmo

As I searched in the iTunes store on my Mac for some iPad apps that where on sale I found an ad to rent the Documentary on Kevin Clash called “Being Elmo”.

Since my daughter is such a big fan I saw the opportunity to pay .99 cents to watch a documentary on a Muppet and Puppeteer that has fascinated so many. By the end of the documentary, I became a bigger fan.

Getting to Know Kevin

Kevin grew up in a rough part of Maryland with very limited resources. I quickly found many similarities in how Kevin was brought up and how I was brought up. His parents motivated him when he started creating puppets; they sacrificed living space to nurture Kevin’s Dream. I remember when I set up my first business grooming dogs, my parents gave me a part of our common living space so I could take care of my clients.

Kevin also wanted to go to Disney as a child; I also wanted to do that. Both of our families could not afford a visit to Disney so similar to me, I ended up going to Disney as an adult with co-workers. When Kevin finally reached Disney World he was accompanying the great and late Jim Henson.

Body of Work

Kevin started creating puppets at a very early age. Where Kevin’s story really won me over was when I saw his work bringing smiles to children with special needs. In another part of the documentary, he makes a child feel very special by giving her a similar opportunity that he got when he was a starting out in the industry.

Bringing Elmo to life requires many sacrifices. In the documentary you can see that his career took time away from his most amazing creation, his daughter. I find it very moving to see how he seeks a balance of being present as a dad and continuing with all his commitments with Sesame Street and other projects.

Elmo is about Love

Getting to see the behind the scenes of Elmo and Kevin’s great body of work, I was amazed that Elmo is a representation of those Papaheroes in Kevin’s life.

His parents nurtured Kevin’s creativity from the start. The love they gave him exceeded anything else. I interpreted Elmo being a tribute to Kevin’s mom and dad. Elmo is a reminder to spread love and strive towards leaving a legacy behind.

I recommend watching the documentary with your family. Also be ready to shed a tear or many like we did.

More about Being Elmo

 

Perfect Moments

Back in 2005 a book motivated me into leaving the demanding work environment of a Big 4 CPA Firm in New York City in search of finding better quality of life.

Reading Gene O’Kelly’s “Chasing Daylight” after his passing really impacted my life. Gene was diagnosed with a tumor and left this world quickly after that diagnosis.

This book was different because it was written by someone that I interacted with multiple times. What made Gene standout was that although he was the Chairman of KPMG a large accounting firm he was a very approachable & nice person.

One of the highlights of the book is when Gene writes about the perfect moments in life. Those moments when everything in the Universe aligns and you experience happiness. These moments can arise in the most unexpected moments but what makes them stand out is the experience you leave with.

My Alertness on High

I came back to Puerto Rico in 2006 trying to keep a balance in making money and having fun. Fast forward to 2012 my life took a take a turn for the best. I became less dependent on material things and even closer towards the importance of family.

Since becoming a Dad those perfect moments happen more often. When I see my daughter accomplish a milestone or just observe her as she progresses I get quick reminders that we are only here for a short period of time and I need to cherish that moment.

As I saw my daughter the other day dancing with my number 1 mentor (Uncle Irving) I quickly realized everything had aligned so that my Uncle, Grandmother, Lucy, and I could spend the afternoon together enjoying the breeze coming from the ocean while we listened to a Funk, Disco, and Soul Playlist on Spotify.

Seeing my daughter interact with those who I love was the key component to it being a perfect moment. Seeing how at such an early stage she loves her Tio Tito and how those moments will always be captured in my head and through the lens of a camera.

Tears can Be Added

I tend to tear up often as I am doing now just thinking of the awesome day I had and how I am so blessed to have great people surrounding me who make time to spend with my daughter.

What is a Perfect Moment

To understand the components of what makes a perfect moment we can have a discussion here. I had a special moment before I reviewed this post I was holding my 18 month old daughter while we both  look at the moon. I wonder how many more people came before me and did the same. I made it a special moment.

Open your ears, heart, train your eye; enhance all your senses so when that next perfect moment arises you can enjoy it then and there.

Namaste!

Mi Super Héroe by @GregorioUribe

Mi Super Héroe by @GregorioUribe

Father’s Day was yesterday but it is everyday in our house and for those who believe in celebrating everyday.

We got a tweet from @GregorioUribe with a link to a video called “Mi Super Héroe”  or “My Super Hero” in English.

@ here's a music videos about how so many of us see our dad's as Super Heros. Hope you enjoy it. http://t.co/3OXul6PX
@GregorioUribe
Gregorio Uribe

The song talks about the relationship a son has over the years with his father from childhood, through heartbreaks during adolescents and  into adulthood. With out giving away too much of the song’s message, it paints a picture of life’s lessons and how we will always view our parent’s as super heroes even when we no longer need them to come to our rescue.

At least that is my interpretation. The song is in Spanish but with the video you can still get a clear message from the video of how involved this dad is with his son throughout the day.

Mi Super Héroe

 

My parent’s first Super Hero Act

The first time I realized that my mom was a Super Hero was in first grade. I was bussed into another town and would sometimes get to school late because of traffic. Well my teacher thought it was funny to call me lazy and sleepy head. Imagine your five years old, you have to get up at 5:00 a.m to go to school and it is at least an hour away. Don’t you think you would fall asleep in class from time to time? Well I told my mom about what the teacher was calling me.

During her first parent-teacher conference, my teacher thought my mom did not speak English, and was basically over stating things and making sure my mom understood. ¿Comprende?

Once she finished telling her about all the things that were wrong with me, my mom basically told her she was going to have to work with me and I would have to work with her. And because of all the name calling, I was not willing to do any work for her. After my mother told her to stop belittling me in front of the class because there would be consequences, things changed from that point on. I saw my mom as Wonder Woman; ten feet tall, with a golden lasso, and ass kicking super hero. My mom is only 4’6 but boy did she get on that teacher; my mom was also a paraprofessional in public school so she knew the effort and tactics it took to teach children.

Beautiful Message through song

I want to thank @GregorioUribe for sending us the tweet. We enjoyed the song and the video so much that we saw it four times. Our daughter was dancing to it and it actually made me cry. We love sharing great content, especially when it is a positive message about the relationships between children and parents. We hope you enjoy it as much as we did.

When was the first time you saw your parent(s) as a Super Héroe? Do they still come to your rescue as an adult?

More on Gregorio Uribe

You can find the song to download on iTunes

Follow @GregorioUribe on Twitter , his blog , or on Facebook.

 

Remembering the fathers in my family

Last year we had just started this site and I wrote about my dad-isms or Papí-isms in this post. This year I wanted to pay homage to my grandfathers and uncles who are no longer with us.

The Feliciano Family

My Paternal Grandfather Eduviges died when I was just beginning Elementary school, and he did come visit me from Puerto Rico several times until he was too ill to travel to see me. One thing my mom told me when he picked me up for the first time was that he knew that he would never get to see me as an adult. He was in his 80′s when he died.

My Paternal Uncle Daniel, our daughter’s namesake, also died pretty young. He lived in Puerto Rico for most of his life and worked for a soda pop company as a driver. He drank way too much but made us laugh so hard when he would come to visit. One of the last times I saw my Uncle Daniel was when he came for my college graduation. On his visit we spent many nights talking about everything under the sun.

Grandpa Osvaldo, Milta (my sister) and Cousin Vincent

 

The Martinez Family

My Maternal Grandfather Osvaldo, died very young, at the age of 59. He was a smoker for many years and had coronary heart disease, which contributed to him dying young. He was also the father of 13 children and not all the times were easy raising kids during the 40′s 50′ and 60′s. We were lucky to live with him for the last years of his life. My sisters and I loved our Abuelo Vallo (his nickname). Not all of our  cousins got to meet him but he loved all of his grandchildren very much. He loved baseball and would watch games in his room on the second floor of our house. When I would throw a fit, ( I was spoiled by him) he would pick me up and splash water in my face so I could stop crying.

Uncle Pete Cousin Elena and Aunt Lillian

My Uncle Pete also sort of lived with us. All he had to do was set up a bed and he would be there full time with us. We all loved Uncle Pete or Midnight (as some people would call him) for he loved nature and all things Native American. If you gave my Uncle Pete a piece of wood and a carving knife, he would make a peace pipe out of it.  He also was a master fisherman with a beer can and fishing string. He would out fish my dad any day of the week. He would always tell my sisters that we should start a singing group. He loved his children, Pedro and Lilly Mae and grandchildren Robert and Tyrell. He did not get to meet his great-grandchildren or grandchild Aidan, but I am sure he protects them with all his being.

Uncle Vincent, Me, and Uncle Jack

My Uncle Vincent and Uncle Jack both died in their forties but not before gifting our family with seven cousins (Sebastian, Christina, and Vincent. Jack, Aliza, David, and Joshua). What I remember about my Uncle Vincent was his laugh. He paved a tough road for himself  because of addiction; he was always in and out of jail. He was addicted to drugs and it made his relationship with us strenuous. I remember seeing my Uncle with his youngest son Vincent (at that time he was trying to be clean) at our house one day. I think I had graduated with my Masters Degree and he was looking at the wall with all the diplomas. He asked me what they were and I told they were just pieces of paper that said I had studied way too much. I remember him saying, “Damn that is good Tuli.”

My Uncle Jack also went down the road of addiction and being in and out of jail. While both of my Uncles were clean, they could come to our house. But if they were not, mom did not want us seeing them in their altered states. One of the last times I saw my Uncle Jack was down the street from our house. I remember wanting to stop and say “Bendicion” which in the Latino culture is a way to have our elders give us their blessing. But I did not stop because I was in a rush and not too long after that sighting, he died. In the picture above, my mother wrote on the back that both of my uncles were upset that I was sleeping when they came to visit me. I was two months old. One thing I can say about my uncles is that they never got sassy with my mom. She was the oldest and ruled with an iron fist.

Creating a family tree

Since I moved to Puerto Rico, I have connected with a majority of cousins through Facebook and created a group for us to share our thoughts, pictures, good and bad times as adults. Since most of my cousins were parents before me (I am the sixth oldest out of 35, I am grateful for all of the advice they have given me throughout the year. I also created the group with the purpose of documenting our family tree for my daughter. When I look at the pictures of my cousins with their children, I see my uncles and grandfathers projected in pictures.

I know they are around protecting us and although not physically with us, they are sharing our triumphs and failures.

Thanks to my cousins Elena and Christina for sharing photos with us.

 

 

 

Different Dads, Same Life Lessons


Photo by McCluckles

This is a Guest Post by Brandi and Brandon Duncan for our Father’s Day Memories Series 2012.

Brandi and I grew up in much different households with often-differing values and traditions. But, regardless of these differences, we also had several similarities. With Father’s Day approaching, we decided to write this from the perspective of the similar things we learned from our dads. Here are the top five things that two very different people taught us: (in no particular order)

Work Ethic

Both of our dads are hard workers. Brandi’s dad has always been more of a hands-on type of person working in maintenance, oil rigs, and construction type jobs. Mine was military for 30 years, then moved on to technology and communications based jobs. Regardless of the field,  both have unsurpassed work ethic, and they both taught us that you work for what you want and don’t take handouts.

A friend in need…

Both of our dads would give you the shirt off their back if you needed it. This is certainly a dying quality in people these days. The funniest thing about them both, though, is while they would do anything for you; it may not have always been the things you thought you needed at that time. Both seemed to have an uncanny knack for knowing what was better for you in the long term rather than the short. It made us both appreciate the “Teach a man to fish…” adage.

Be open-minded and never judge

This is certainly a lesson that we all need to continue to pass down. Neither of our dads judged people at face value. Bigotry had no place, though both of them came from a time when it was a common practice. Our kids face a much more diverse society than even we did growing up, but we continue to reinforce that a person is a person regardless of their sexual preference, color, religion, or where they live.

Treat others…

Manners will get you everywhere. Granted, where Brandi’s dad is from, “yes, sir/ma’am” is expected (and enforced, even in schools) and that was not the case in my home, both of our dads insisted on showing respect to others and you treat people how they should be and how you would want to be treated yourself. Surprisingly enough both of them used the phrase “always be invited back”—something we both still use today. Our kids know that they are to act not only right, but also in such a way that the other parent would not hesitate to have them over again.

Don’t sweat the small stuff

One of the most endearing qualities in both of our dads is that neither takes their self very serious. Both have the mentality that you work hard and you make the time to play hard. Beyond making it a rule that you enjoy your life, they both agreed that you can’t let the little things in life get to you. After all, if you stress about the little things, what are you going to do when faced with something big? More than that, they both taught us that some things you just can’t avoid, so find a way to fix it rather than focusing on how bad it is at the moment. (I believe mine once uttered that “a bill never killed anyone”—very true.)

There you have it—two very different dads who instilled very similar values into their kids. Brandi and I are thankful for these lessons and are adamant about passing them to our kids. And, both of us will admit that it sure is nice to hear how well-behaved and good our kids have been when they return from somewhere. We must be doing something right.

In closing, Brandi and I want to thank Raul, Lucy, and the rest of the Papa Heroes team for the opportunity to guest post on their wonderful blog. We look forward to watching it continue to grow and continue to be a great resource for parents in the fight for online safety and good parenting for our kids.

Thanks to Team Duncan for submitting this post. You can find Brandi (@DuncanBrandi) and Brandon (@BrandonPDuncan) here:

Photo  by  McCluckles


LadyBug Performed by @rscspokenword

This is a guest post and spoken word poem by Rodrigo Sanchez-Chavarria @RSCSpokenWord for our Father’s Day Memories 2012 Series.

LadyBug by Rodrigo Sanchez-Chavarria

LadyBug

Thanks to Rodrigo for submitting this beautiful spoken word poem. If you would like to learn more about Rodrigo, you can find him on the web:

Father’s Day Memories Series 2012

Daniela's first Art Project at 6 months

 

Father’s Day is fast approaching and we are looking for you to share your memories, dad -isms ( such as the ones I wrote about my dad, Hector, last year) , pictures of you and your dad, your hopes and dreams as new dads and veteran dads, your advice to new fathers, or anything you wish to say about fathers.

We always put mothers on a pedestal for all the things they do, but there a fathers who do just as much or even more. We want to provide you the space to share your Father’s Day Memories with us on PapáHeroes. Submit your poems via our contact form , send us a messag on Facebook, Twitter @Papaheroes, or Gplus,  and we will get back to you.

If you are going to submit pictures, quotes, and poems, please make sure you give full attribution to the person who owns the photo wrote the quote or poem.

Thanks to Daniela for letting me display her artwork.

Caine’s Arcade The Real Prize is Inside

UPDATE (4-18-2012) Our friends at @8BitDads have a neat video and article of Bryan Ferguson, (one of the founders of @8BitDads) visiting @CainesArcade the day they presented Caine with a check for his scholarship fund in the amount of 152K. From this event and journey, Caines Arcade Foundation was born to encourage and foster other children to create. Read more on here

UpDate (4-12-2012): If your child has created a carboard arcade game, send a picture or video with the name of the game, and how it works to Caine. You can share it with him on his Facebook Page.

The other day Raúl bought a bag of Cracker Jacks and said that when we were kids, there were always better prizes inside the bag of Cracker Jacks. I have to agree because I do remember getting little tinker toys instead of the paper cow tongues we got with this particular bag.

I am at an age where I remember playing in a teepee created by my older friends, playing tag, and being outside as much as possible. I also remember getting our first video gaming console which was an Atari. I remember walking with my older friends who were also neighbors to the mall to play arcade video games. Yes the good old days.

I want to play in that Arcade.

This morning on Google Plus, a video was shared called Caine’s Arcade. I clicked the link thanks to Eric Milliken who circled us on Gplus Papaheroes. I did not see the video because we got sidetracked with baby proofing the home office. So when C.C. Chapman posted the video, I went back to the vimeo video I had opened earlier but had not viewed it.

Caine’s Arcade from Nirvan Mullick on Vimeo.

Supportive Dad and Customer

When I saw the video with Raul, we both cried over the kids determination, creativity, and problem-solving skills. We both talked about how his father George, supported him throughout the process by providing him the space to build his arcade. All it took was one customer, Nirvan to see that Caine had put a lot of thought into his business.

I don’t know how many times I have seen my nephews and even adults say that they are “bored” on Facebook. The lessons and takeaways from @CainesArcade was far better than any Cracker Jack prize you could get these days. You can make a list of all the adult lessons from Caine’s business and use them for yourself.

If your children say they are bored, show them this video and tell them to follow Caine’s example.

You can go to Caine’s Facebook page, Twitter, and homesite.

If you would like to donate to a scholarship fund for Caine, you can go here. As stated on the homepage,

“… imagine what this kid could build with an engineering degree.”

Nice job to @CainesArcade, his father George, and first customer @Nirvan.